CLL Society is an inclusive, patient-centric, physician-curated nonprofit organization that addresses the unmet needs of the chronic lymphocytic leukemia and small lymphocytic lymphoma (CLL/SLL) community through patient education, advocacy, support, and research.

Dedicated to addressing the unmet needs of the CLL and related blood cancer communities, we explain the rapidly changing therapeutic landscape and the importance of clinical trials, support and build patient networks, engage in research and educate providers and patients.

We envision a world in which the entire CLL/SLL community can equitably access quality education, support, and care, to lead healthier and richer lives. We encourage and support smart patients, providers, clinical trials, research, healthcare delivery systems, and therapies. We believe SMART PATIENTS GET SMART CARE™. Learn more at cllsociety.org.

The nonprofit CLL Society provides free resources and services for CLL/SLL patients and care partners, and we invite you to learn about how we can help you help your CLL/SLL patients. CLL Society is dedicated to providing education and support focused on the CLL/SLL community. Programs, resources, and services you might find helpful are listed below.

About The CLL Society
CLL Society’s mission as an inclusive, patient-centric, physician-curated 501(c)3 is to address the unmet needs of the chronic lymphocytic leukemia and small lymphocytic lymphoma (CLL/SLL) community through patient education, advocacy, support, and research. CLL Society supports CLL/SLL patients, care partners and healthcare providers by monitoring, reporting on, and explaining advances in the understanding of the underlying biology of CLL, emerging CLL research data, and the rapidly evolving CLL therapy options. Our motto is SMART PATIENTS GET SMART CARE™.

Flagship Programs
The CLL Society Website
The CLL Society website (https://cllsociety.org) is rich in educational content for primarily CLL/SLL patients, and care partners and also healthcare providers. The goal of the website is to help all stakeholders better understand chronic lymphocytic leukemia and to support patients toward getting their best possible care through education and resources. Features include information for those who are newly diagnosed, relevant treatments, breaking research, clinical trials, educational programs, support groups, and more. The website has additional useful resources including a list of normal lab values, a spreadsheet for keeping track of lab results, a CLL glossary of terms, and abbreviations and acronyms.
The CLL Medicine Cabinet
CLL Society’s Medicine Cabinet holds nine of the most common medications that are used to treat CLL and SLL. As you navigate through the CLL Medicine Cabinet, you will find printable non-branded medication sheets that explain everything you need to know about each drug in an understandable way. https://cllsociety.org/cll-med...
CLL/SLL Toolkit
The CLL/SLL Toolkit is a comprehensive, patient friendly resource providing short printable explanations or lists of resources about everything from the what the spleen does to lists of approved therapies to financial assistance programs. Printing or sharing links to this information can consolidate and augment your conversations and shared decision making with your CLL patients and their care partners: https://cllsociety.org/toolkit
Research
CLL Society's Research Program provides financial support to underfunded areas of basic and translational science specific to CLL/SLL. While acknowledging the incredible amount of progress that has been made over the past decade in CLL/SLL management, we recognize that there is much more work that remains. CLL Society hopes that by providing emerging scientists with substantive financial grants that we can help grow and develop a new generation of lab scientists committed to solving the unmet needs of the disease. https://cllsociety.org/about-c...
Test Before Treat™
CLL Society's Test Before Treat™ Campaign raises awareness about the importance of testing before each treatment, to facilitate the patient and healthcare provider dialogue to empower patients to discuss testing. Resources include a one-page informational sheet about testing and red, double-sided Test Before Treat wristbands that serve as a reminder. https://cllsociety.org/tb4t
CAR-T Therapy Brochure
CAR-T therapy is a revolutionary but still experimental therapy in CLL/SLL that trains the patient’s own cells to attack the cancer. Our CLL specific CAR-T Therapy Brochure helps explain CAR-T Therapy to patients. Healthcare providers can order free printed copies for their patients or direct them to the online version by visiting our website at: www.cllsociety.org/CAR-T
CLL Society’s Patient & Care Partner Support Groups
The CLL Society’s trained volunteers lead support groups that provide CLL patients and their care partners the opportunity to participate in our face-to-face CLL-specific educational curriculum as well as the chance to meet and connect with others who share their diagnosis. During the coronavirus pandemic, all meetings have been transitioned to a virtual platform. CLL Society has operationalized more than 40 support groups in cities across the U.S. and two locations in Canada. Find out more about our support groups. https://cllsociety.org/support...
CLL Society’s Peer Support Program
The Peer Support Program connects patients and care partners with a fellow individual impacted by CLL for a one-on-one support discussion. A CLL Society Peer Support Volunteer can share their own experiences to help you navigate the watch and wait period, insurance, newly diagnosed questions, making treatment decisions, managing side effects, and more. https://cllsociety.org/program...
CLL Society’s Emotional & Spiritual Advocate Program
This program connects patients and care partners with a board-certified chaplain. CLL Society invites people to connect on a variety of topics and can support individuals and families regardless of their spiritual and religious affiliations or beliefs. https://cllsociety.org/program...
Ask the Experts
CLL Society provides a free service which allows the CLL/SLL patient and care partner community to receive answers to commonly asked questions about the disease. Our Ask the Expert services do not render medical advice and is designed for educational purposes only. Patients and care partners submit questions via email that are confidentially sent to either an expert CLL physician, registered nurse, lab scientist, hospice/palliative care physician, or a pharmacist for reply. https://cllsociety.org/resourc...
Expert Interviews
CLL Society consolidates, analyzes, explains, and publishes key findings presented at all the major CLL-related scientific conferences such as ASH, EHA, iwCLL, ERIC, and ASCO and published in peer reviewed journals. Healthcare providers can easily access on-demand, clinically relevant videos featuring experts in CLL, plus articles to increase awareness of the latest clinical and preclinical advances in an easy to access format. https://cllsociety.org/treatme...
CLL Educational Programs
CLL Society produces educational programs with CLL expert physicians and others on many topics including MBL, diagnosis, survivorship, treatment options, and more. Audience interaction is encouraged through advance question submission, live audience Q&A, and polling. All sessions are recorded and available on the CLL Society website. Visit our website and sign up for the weekly email to be notified of upcoming and on-demand educational events for your patients.
We hope you find this information helpful, and we invite you to become a part of the CLL Society community. Visit our website or reach out at https://cllsociety.org/contact...
Stay Strong… We are all in this together!